pa·tience –noun
1. the quality of being patient, as the bearing of provocation, annoyance, misfortune, or pain, without complaint, loss of temper, irritation, or the like.

…oops, I think I failed the very first requisite of the quality. I often tell people, “I gave up patience forty years ago for lent!” The only problem with my lack of equanimity is that the first requirement of ‘LOVE’ as stated in scripture is: “Love is patient…” Obviously G-d is working on me (and all of us) as we have definitely committed to LOVE, thus we have indirectly committed to the aforementioned, albeit somewhat explicative noun. I will now have to modify my “sacrifice” for lent.

Well, today’s conference wasn’t as enlightening as we had thought. It was a re-iteration of what we currently know with only the addition of the tentative discharge goal being that of April 29th. PT and OT are really working on Cole’s mobility. And ST on swallowing. And with my added two-cents, some medical issues are being farmed out for other physicians to evaluate. AND, with Brian’s two-cents added they all just learned that Brian is expressive and an artist, therefore passionate about his son!

Last night I was able to feed Cole some bites of pudding, (the vegetable soup was too spicy for his raw/sore throat and tongue). When I asked Cole if he would like to do it himself, he replied with, “I am not allowed.” Like I have said before, he is very aware and cognizant of his care, and he does not hesitate to keep us all (staff included) informed of the boundaries!

This morning we arrived to him having a fever and feeling sick to his stomach…we are still doing the “waltz”, two steps forward and one step back…..one-two-three, one-two-three, etc. Brian gave Cole a good pep talk before leaving for work and I helped cleaned out his eyes and did some minor assisting with OT. I then left hoping Cole would be left alone for the two hour window of rest he had scheduled out on his planner. Chances are very good, however, that the Ophthalmologist and/or Urologist (aka “urineologist” as Brian and I like to call him. haha) would choose that time to make their rounds. That is my guess anyway, I haven’t heard as I have been using the afternoon to get some work done here at home (and a little lunch date in with my friend). But usually when we think Cole will get a little shut-eye, we are proven wrong.

Now for some future minded conversation…
When we come to the end of the AR road (the one that we are currently traversing), we will have to decide which is the next best step for Cole’s rehabilitation process. So that is where you will find us, in the place of “thoughtful evaluation”; but before you jump on the train with us and start filling our heads with all kinds of suggestions, I have to say that our outlook fluctuates from day to day as Cole is still teetering between ‘medical patient and rehabilitation candidate’. We will keep you all in the loop as we start to see the transitional line a little bit clearer. In the meantime, please stay with us and keep in constant communication with our Lord; for you do not want to be a novice in faith should difficulty come knocking at your door–trust me in this, I most certainly know!

John 15:10-11
“If you keep my commands, you will remain in my love, just as I have kept my Father’s commands and remain in his love. I have told you this so that my joy may be in you and that your joy may be complete.”

Nehemiah 8:8-12
“They read from the Book of the Law of God, making it clear and giving the meaning so that the people understood what was being read.
Then Nehemiah the governor, Ezra the priest and teacher of the Law, and the Levites who were instructing the people said to them all, “This day is holy to the LORD your God. Do not mourn or weep.” For all the people had been weeping as they listened to the words of the Law.
Nehemiah said, “Go and enjoy choice food and sweet drinks, and send some to those who have nothing prepared. This day is holy to our Lord. Do not grieve, for the joy of the LORD is your strength.”
The Levites calmed all the people, saying, “Be still, for this is a holy day. Do not grieve.”
Then all the people went away to eat and drink, to send portions of food and to celebrate with great joy, because they now understood the words that had been made known to them.”